I'm why you're here

Kuhu

Chip data analysis enabled researchers to look into the genetic basis for certain low grade tumors

Diagnosis: Ganglioglioma on the brain stem

Hobbies: Dancing

Favorite Song: "Rolling in the deep" by Adele

CHIP Impact:  Through chip data analysis, researchers were able to look into the genetic basis for certain low grade tumors which had previously been very difficult to treat.  This resulted in the identification of a specific treatable genetic mutation which, in Kuhu’s case, after radiation failed, resulted in dramatic improvement in scan and in symptoms. 

When Kuhu was twelve-years-old, she went to her yearly checkup and told the doctor that she was having trouble writing, playing the clarinet, and that everyday activities were difficult because her right hand was not functioning properly. After numerous MRI’s and meetings with several different doctors around the state, doctors found a small mass on her brain stem known as a benign Ganglioglioma brain stem tumor. Kuhu had surgery that removed most of the tumor followed by proton radiation therapy in Houston, Texas. Unfortunately, she continued to have trouble eating, drinking and walking due to nausea. Another MRI showed that a new tumor had grown in a different location, triggering the nausea. That’s when she and her family found out about the research of Dr. Foreman. Under Dr. Foreman’s guidance, she’s begun a treatment course that is a combination of traditional chemotherapy and the new medication. So far this has been working well. Kuhu recently held a fundraiser where she raised over $5,000 for The Morgan Adams Foundation!